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21st Century Cures Act

Gus Bilirakis makes impressive appearance on Political Connections

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Sunday morning, I had a chance to catch Gus Bilirakis on the weekly Bay News 9 Political Connections digest. The Tarpon Springs Republican, chatting with host Al Ruechel, touched on what I would easily say is his most significant issues, including problems at the Department of Veterans Affairs, co-sponsoring the 21st Century Cures Act, and his vision for 2017. During the eight-minute segment, viewers could catch a glimpse of three key moments. “This shouldn’t happen—it’s just an awful thing,” Bilirakis…

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Bill Nelson, Marco Rubio applaud NIH funding bill passage; Moffitt money preserved

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Florida’s Republican U.S. Sen. Marco Rubio and Democratic U.S. Sen. Bill Nelson both applauded passage Wednesday by the U.S. Senate of a bill that heads off potential cuts in cancer research at Moffitt Cancer Center in Tampa and the University of Miami’s Sylvester Comprehensive Cancer Center. The Senate approved H.R. 34, entitled the “21st Century Cures Act,” by a 94-5 vote Wednesday. The House of Representatives approved it earlier. “This bill makes a lot of improvements to our nation’s medical research programs, but the…

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Gus Bilirakis: Giving a voice to rare disease patients

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Two years ago, I held a series of roundtable meetings in Lutz, Florida with physicians, advocates, patients, and families from our area to hear about the challenges of finding cures for the thousands of deadly and chronic diseases impacting millions of Americans. Diseases like cancer, ALS, Alzheimer’s and the 7,000 rare conditions. These discussions were eye-opening to me. I got a true sense of how difficult it is to get new medicines to market, and how painful it can be…

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